It is foolish to watch a train coming down the track and still be disappointed when it hits you. It is naive to think that you will continue to ‘dodge the bullet’ that you have successfully (relatively) avoided for over 26 years. But what prompted this blog?
I have always fought the inexorable creep of Multiple Sclerosis with a passion and fire that I never knew I had. That fight has been going on for more than 26 years and I know I cannot win the war but I will go down fighting. The first lost battle was when I started openly using a walking stick, prior to that I had been using an umbrella as an aide, even in the summer time. During that period I was classed as a pessimist for carrying an umbrella in the height of summer. I then graduated to the occasional course of steroids to restore a sense of equilibrium to my body. The next milestone on my journey was the acceptance of the fact that I occasionally needed a wheelchair. This really was liberating; it took the pressure of my wife and family but also gave me a huge degree of independence. Another major bonus was the energy I saved by using the wheelchair allowed me to do other things. That was 10 years ago. I have had a couple of courses of steroids between then and now and they all worked well, that is up to the most recent one which was really ineffective.
Over the past 2 years I have accepted that the legs are not great and when we changed the car recently we opted for an automatic. That was a major decision and one that did not come easily. Another small battle lost! More recently I had a physio appointment and Jamie suggested that I try a rollator for a couple of weeks. It made a difference and negated the need to do the ‘furniture crawl’ around the house. The plus side of losing this small battle is that house redecorating costs should be reduced. I will no longer be bouncing off the walls as I try to navigate my way around the house. I still prefer the wheelchair for outside the house but the rollator makes sense inside.
This is not really a whinge but a cathartic vent.
This the most important part of this blog. I’m back. I have my mojo back. I have my focus back and all is good in the Kingdom of Declan.